You always think you're ready, but you never really are. Today's clinic visit brought the dreaded news. 12.3% blasts. When we went to the ER for platelets on Saturday, Tynan's platelet count was at 11. We have not seen him under 20 since prior to transplant. So the thought crosses our minds, but hope keeps it unspoken. He still looks and acts like nothing is wrong; and we thank God for that everyday. Looking at today's counts the blast count was present on Saturday at 3.4% and they just didn't tell us.
For now, we will increase his chemo and slowly take him off the steroid. We will continue our clinic visits twice a week until his platelets or blood transfusions are needed more frequent.
There is still no time stamp. It could be 4 months or something could happen for no reason at all and only be a week. We continue to pray that most of those days will be pain free and full of smiles.
We want to thank everyone for the continued support, the love, and the prayers. God Bless!!!
Still a little swollen from an allergic reaction to his platelets today but this package from PBR sure did help make one of those smiles!
Hello. Although we never officially met, we were on the BMT unit at the same time last summer. Our son Caleb had his transplant in August and was the one always riding on the trike in the halls. Kate's mom passed your blog on to me and we have been praying for sweet Tynan. We will continue to keep you all in our thoughts and prayers.
ReplyDeleteSending hugs from Wisconsin,
Trisha and family