Ups and Downs

Almost two weeks ago, Tynan was so uncomfotable, and every day seemed to bring more pain and less smiles.  He accepted few visitors and didn't get off the couch unless he needed to go potty.  Tynan had gone from napping a couple times in the day to being awake a couple of hours in the day.  He went from going to the bathroom to using a urinal.  He'd almost quit eating all together.  Just when we thought we'd only see him get worse,.....we are blessed once again with some wonderful days.

They may not be as wonderful as they were two months ago, but they are far better than they were two weeks ago.  He kicked the girls out of the house earlier this week so the he and dad could have some boy time. He stays up most of his day. And yesterday he asked to go "out." We went to the mall and he shopped.  Yes, he shopped.  We are greatful for these better days.

Today was our regular clinic visit for blood counts and transfusions.  Tynan has had no immune system for over two months and today his ANC was 520.  That is great for someone who was not expected to recover his immune system and with an active fungus.  WOW!! Where did this come from. Along with having an ANC, his platelets were not yet at transfusion levels. All his numbers were trending in the right direction.  And he has actually put a little weight back on!!!!

The down side of today is that 1/2 way through his antibiotic infusion, his heart rate dropped from about 102 to 52.  We are praying tonight that this is due to the amount of fluids that were pushed through his port.  His blood pressure also continues to be high, which may also be a contributing factor. 

Thank you dear Lord for these few days of smiles, motivation, and appetite.


Everyday you hear of someone else; another innocent child, another loved one, another friend; and their families that are effected by this monster they call cancer.  To all of you, you are in our hearts and prayers daily.

The Lord is close to the brokenhearted and saves those who are crushed in spirit. Psalms 34:18