Phase I and Rodeo

Before leaving to Disney, we were told that Tynan's treatment was not working.  His results had gone from 13% to 21% and as of yesterday he is at 41% cancer cells.  In addition his kidneys have been effected and is now on blood pressure medication as well.  At 41% we now qualify for the Phase I study. They will most likely have to adjust the dosages of medications due to his kidneys/blood pressure, but hopefully it is still enough to get him in remission. 

Tynan has been given the opportunity to some amazing things at Rodeo Houston 2012, and the doctors have encouraged us to take advantage of those rare opportunities before we begin Phase I, as they do not give us much hope.  While we try to stay positive, and pray for the best possible outcome that only God can grant us we know the reality of our situation; and continue to be torn between making memories to share for years to come, or getting started with the bad days, the pain and the tears, for the sliver of a chance of a miracle.

As some of you know, when Tynan was in the hospital in April 2010; he watch "8 Seconds" for the first time.  This was a movie about Lane Frost, the 1987 Worlds Champion Bull Rider.  He has been turned on to bull riding since.  He watches PBR with dad every chance he gets, and dreams that one day he too, will be a World Champion Bull Rider.  Ms. Terri, a dear friend, has arranged for him to do a little mutton bustin when he is able; however because his platelets continue to be low, we are not sure that he will ever be able to climb on the back of a sheep.  He has also been given the opportunity to go behind the scenes with the cowboys of the PBR on February 25th; and his Ya-Ya(sitter), has arranged for Tynan to be in the Grand Entry, and have access to the cowboy's lounge, and maybe get the chance to help at chutes, mutton bustin chutes that is.  Look for dates soon. 

We will start the Phase I study soon. We do not have all the details of the "road map" so check back soon for the details.