Overdue Update

Update and happenings of the last few days sorry we haven’t been able to update this daily.  Tynan’s blood pressure has come back up and has been in the normal range for a couple of days.   Wednesday he was finally able to urinate after 3 days but even rejoicing of that small step it was a terrible night as his little bottom is really bad with sores and the abscess that are very painful.  It hurts so bad that he would try to get on the couch and it would take 5 minutes to just put his butt on the couch from the time he started crawling up on it and then he'd say “wait, wait, wait just a minute hold on just let me do this” and then we heard “oh my gosh Jesus please help me”.  He was so miserable and the numbing cream was not working and we pushed the pain medication button every 10 minutes and then some and it just wasn’t helping.  They believe the abscess he has is pushing on his colon making him feel like he has to go to the bathroom but there isn’t anything to come out.  The doctors say they have no hope that they will be able to get this infection under control and they expect it to only get worse, which means more pain and suffering.

The amount of pain medication was doubled on his continuous drip Wednesday, as was the bolus amount they allow when we push the button.  Thursday the docs thought his liver was starting to shut down but his blood work shows that it's not as bad as it looks but that there are signs of stress to the liver showing that the disease is progressing. He is retaining some fluids and today the docs said it sounds like there is some fluid in lungs.  His blast count is showing 91.0% and 0 ANC, his white blood count (WBC) is 21, creatinine is in the 3's, potassium is 3.8.  For now he will get platelets everyday and blood as needed.  He sleeps most of the day because of the disease and medicines but there are still those moments we get like the day they came to do an ultrasound and he asked for “sister” and said he wanted/needed her so she got close to the bed and he reached for her hand and just held it while the test was being done.  He asks for her regularly to be sure she is near and Sykora does not want to leave as she wants to be there for him.  And yet another last night we got something that has not happened all week – he actually sat up and watched the Astros and sipped on water.  Thank you God for these small moments.  Though some numbers look much better than they did Monday the doctors are afraid the damage has been done and advised that we bring in out of town family to visit.

Our Cowboy is not going down without a fight.

Thank you again for your love and support.