Thursday, July 26, 2012

Waiting for Jesus

Though we are still getting moments of cherished memories Tuesday evening we were told that we would probably only have days with our little Cowboy.  There will be no more blood given and his potassium and calcium levels are both at levels that could cause his heart to stop.  His pain medicine started out at 5 mcg and is currently at 75 mcg and we can still give him added help (50 mcg) with the bolus of pain meds.  He is in a lot of pain and discomfort from his sac as the swelling has increased and a lot of itching on his bottom.  He gets very frustrated as he has frequent urges to urinate but is rarely able to produce.  Mom still gets in trouble frequently as she is the scapegoat for all that goes wrong but is the first person he wants to comfort him.

Our best hope is that they can get the pain and discomfort under control and he will go quietly in his sleep.
Thank you all for the continued show of support and prayers.

13 comments:

  1. I am so very sorry you are traveling this road. I will be keeping Tynan and your family in my prayers.

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  2. I heard about you through a friends Facebook page! Praying for all of you during this time. I can't imagine how hard all this is. I just know where he is going, there is no pain! Praying for peace during this time.

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  3. My heart is breaking for you. Praying for Gods comfort. I think about you guys all the time and although I haven't met Tynan- he has moved me. I am praying for Tynan to get some peace. I am only a few doors down- please let me know if you need anything. I'm do sorry.

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  4. Heard about Tynan's crusade through facebook. Sending love and prayers to him and to his family in this very difficult time.

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  5. God Bless Tynan. He's a true Cowboy. Strong and loving. I cannot imagine the pain you must be going through, watching your little man go through such struggles.
    God chose you as his parents for a reason (((hugs)))
    My prayers are with you all and cyber hugs for Cowboy T.

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  6. So sad....praying for all of you and that Tynan will be in the arms of the lord where he will not be in pain or suffering. I am not married nor do I have kids myself but this breaks my heart because I can't imagine what you are all going through. I think about your family daily and pray for God to give all of you strength and support through this difficult time. Hugs.

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  7. I'm praying for your little man and the moments that y'all have! I'm hoping and praying god can send y'all a miracle! I send love and prayers from my family to yours! May god bless and be with y'all in such a hard time!

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  8. I'm not praying for Tynan- he's cowboy tough and he will be out of pain soon. My prayers are for the rest of you who will feel the loss of this precious young cowboy for the rest of your lives. My specific prayers are for Sykora. I lost my brother way to young and I know the bond that brothers and sisters have. She has been a real blessing to Tynan. I know she has had to be strong and tough but my prayers are that God would give her a special blessing of peace.

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  9. I saw this on a friends facebook and I want to pray for you all. I went to school with Gerardo. I pray for God's mighty hand to work a miracle in your sons body and to heal him from the top of his head to the soles of his feet. I plead the blood of Jesus over his body. May the Lord wrap His arns around you all and comfort you. Jesus is in the miracle making business. God Bless!

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  10. I cannot imagine your pain right now, but our Heavenly Father will make your precious angel whole again when he gets to Heaven. I will continue to pray for your family and all the lives this sweet cowboy has touched. May the Lord cover you in his grace and peace. God bless you and your family.

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  11. My sister told me about you and your little cowboy angel, Tynan. She is so in love with him. My heart aches as I read only a little of your blog...that's all it took to bring the flood of tears and the memories of when my four year old son, Markie, and I walked the same path. There are no words that can lift your sorrow, and only the unconditional love of a mother having seen her child suffer so much can allow her to give her child back to Jesus. Just as Mary did when Jesus endured the passion. I remember having that conversation with Markie...about Jesus coming to ask him to play. It was the hardest, most heart wrenching ever. I am sharing this scripture which gives me solace, and I am praying for Tynan and your family. XOXO..."I prayed for this child, and the LORD answered my prayer. He gave me this child. And now I give this child to the LORD. He will serve the LORD all his life.” (1 Samuel 1:27-28). May God bless you all.

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  12. I hit send too quickly...I know you are a family of great faith and just from the few lines I read, I know that Tynan knows Jesus and has talked about going to heaven. The healing is certain...it will come. God promises that. We pray for physical healing, that our loved ones will remain here with us, but sometimes the healing comes with the grace of God's mercy and allows the spirit to dwell with Him forever. There is no greater gift, as that is what we are all striving for...heaven. That still does not address the lonliness and the heartache that the death of a child brings...the insanity, the wish to go with them, the emptiness, even the anger and resentment...sometimes even at God. I'm so sorry... :''(

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  13. I heard about your little cowboy on facebook, my heart goes out to you and your family. My prayers are with you at this time of sorrow. God bless you and your family. I walk every year for Light the Night in Houston and the Woodlands. Again my prayers are with you all. RIP LITTLE COWBOY, you are playing with the rest to the angels now.

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